TSF 5K for Rare Neuroimmune Disorders

TSF 5K for Rare Neuroimmune Disorders

The TSF 5K for Rare Neuroimmune Disorders is a 5k run taking place on September 28, 2025 in Weston, MA. The event aims to raise funds to support two additional research projects in 2025. Registration is $25 and ends September 28, 2025 at 11:59pm EDT.

Event Location: 11 Town House Rd Weston, MA 02493 US

Event Time: 9:00AM EDT

After suddenly losing vision and feeling in her body, Sumaira was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease that affects the central nervous system resulting in vision loss and paralysis. Two months after her diagnosis, she started The Sumaira Foundation (TSF), a now global nonprofit organization dedicated to raising awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. Since 2018, TSF has funded $1m in rare neuroimmune disorder research, fellowship and journal publications as a result of grassroot fundraising. The aim of the 5K is to raise enough funds to support 2 additional research projects in 2025 through the Foundation’s SPARK and Unicorn grants.